NICU WEEK 2...

WEDNESDAY, APRIL 6th:
Lola graduated to Nursery B!  Her new bed is by a window looking towards the Y on the mountain.  We are hoping she can get moved by a window looking out to the hallway.  This way Dexter will be able to see his sister!  Moving to Nursery B is a HUGE accomplishment in the NICU world.  She is taking Michelle's milk well and digests it well too.  You would be surprised how much these preemies pass in a bowel movement.

The nurses get her to suck a pacifier while she is feeding through her GIT (gastrointestinal tube) to associate sucking and feeding.  During holdings, the nurses feed her.  Derek held her for the first time tonight and she started sucking on his chest.  It was really cute!

Lola has been on an IV of protein nutrients to help gain weight, however, since she has been doing so well with Michelle's breast milk, today the nurses weaned her off.  Now, through her PICC line, she will receive her antibiotics, which finish next week.  Lola is also receiving Hydrocortisone treatment which helps her adrenal glands produce Hydrocortisone.  The Hydrocortisone helps her manage stress.  The nurses have already started weaning her off of this too.

Derek was able to hold Lola for the first time tonight.  My heart melted and I'm pretty sure Lola is going to be Derek's little princess.  She has such a sweet personality already.  We don't know if the hole in her heart has closed.  Dr. Minton won't do another ultrasound until she goes home.  We ask that all those reading can pray that it will close.  We also ask that her lungs can continue to develop as well.

Wrapped in her Minnie Mouse blanket from Grandma Debbie.

THURSDAY, APRIL 7th:
There wasn't too much change from yesterday.  She is now back up to her birth weight.  Lola is off the Protein IV and is just receiving antibiotics through her PICC Line.  She weighs 3 pounds 11 ounces today.  She is already back up to her birth weight after a week!  And the nurses put her first bow on her.  It is amazing to see her progress in just a week.

FRIDAY, APRIL 8th:
Little Lola now weighs 3 pounds, 11 and 1/2 ounces.  She was started on fortified milk, which is pretty much protein powder.  She gets 2 added calories a day which help her to gain weight faster.  Today while Michelle was holding her, Lola had some reflux and had a hard time breathing.  Her face went blue.  We called for the nurses immediately.  The nurses taught us that with preemies, their throat is open because GI tube is down their throat.  It is normal for them to have some reflux.  Some have it worse than others.  So far, Lola doesn't seem to have it too bad.  Anyways, the nurses taught us what to do in this kind of situation.  We are supposed to start rubbing her sternum or her back.  It helps remind them to breath and loosens whatever is stuck in their throat.  It was a little scary, but now that we know it is a normal thing and the nurses keep a close eye on these babies, we feel much better.

SATURDAY, APRIL 9th:
Lola is still progressing well.  Her oxygen fluctuates during her feedings.  She is starting to show more "cueing signs" every 3 hours.  This means she will start to stir and her mouth will start to root around her feeding times.

SUNDAY, APRIL 10th:
Lola now weighs 3 lbs and 13 ounces.  It is amazing how fast these preemies gain weight on the fortified milk.  She is starting to show more signs of reflux.  Michelle did skin on skin with her tonight and Lola had an "episode".  (It was more epic and scary than any of the Star Wars episodes).  An episode, as the nurses refer to it, is when she chokes on her feedings and forgets to breath.  Her face turned a bit blue and we learned from the nurses to rub her upper back or her sternum to help remind her to breath.  It was scary, but now we know what to do in this situation and we are so grateful she is monitored 24/7.

MONDAY, APRIL 11th:
Lola is still doing the same as Sunday.  Not much change.  However, no news is good news.  This was the first day that Dexter was back in our home.  I am feeling more like a mom and Dexter is such a good distraction to everything going on.

TUESDAY, APRIL 12th:
The doctor called me with an update that Lola had a couple bad episodes throughout the night.  The doctor was worried that Lola might have an infection, so she ordered a blood test.  Her blood work came back normal.  The nurse didn't think she had infection because these episodes only occur near the end of a feeding.  They have made her feedings last longer, which help a little bit, but there isn't a lot that can be done for reflux.  These preemies are just so little, their guts are underdeveloped, and they need time to learn how to grow.  The protein added calories (fortified milk) helps them grow but it also can cause them to have upset stomachs.

Tonight Derek held her and her breathing rate kept dipping.  She was so comfortable on Derek's chest that she would fall into an apnea.  This again is somewhat common in preemies, but it is also scary!  After we notified the nurse, she came in and helped Lola breathe again.  Once Lola was put back in her incubator, she took her pacifier and sucked on it for about a minute.  This is the most Lola has ever sucked on her pacifier.  Lola also weighs just a little over 4 pounds now.  She now weighs enough to be put in a crib.  The nurses think that a regular crib, which can be elevated higher than an incubator, might help her digestive track when she feeds.

NICU WEEK 1...

WEDNESDAY, MARCH 30th:

Little Lola had breathing tubes placed.  Her lungs, like small balloons need some help stretching out.  The ventilator helps stretch them out.  She also had a gastrointestinal feeding tube placed.  She takes a tsp. of milk/collustrum every 3 hours.  She also has a umbilical IV where she is receiving antibiotics.  The doctor is treating her like she is infected because she had been acting like she was.

THURSDAY, MARCH 31st:

She is becoming more independent at breathing on her own.  The RT keeps turning down the ventilator.  She is still on antibiotics and a feeding tube.  Not much change from the day before.  She is stable, which is good.

FRIDAY, APRIL 1st:

Lola would have been 30 weeks today.  She had a slight fever in the night.  They were able to bring the fever down but, Dr. Minton was concerned she might be getting an infection.  They did a Lumbar Puncture and took CSF to test for Meningitis.  The first results came back negative.  We are still waiting on the culture, but Dr. Minton doesn't think she has it.  She does have a small hole in her heart, but that is normal with premies.  It should close on her own.

SATURDAY, APRIL 2nd:

She was able to get off the ventilator.  They pulled her breathing tube out.  Mom was able to hear her cry and it was beautiful! So far she is stable with the oxygen tube in her nose.  She looked a bit yellow today and so they started her on the lights.  It is very normal for preemies to have jaundice since things are still developing.  She looks like she could be in Star Trek with her cool eye protection on.  She is also receiving a Heart Echo today to send to the NICU's cardiologist for the hole in heart.  The hole in heart is in the muscle which means it will most likely close on it's own.  Once we get the results back from the Echo, we will know more.  Her NICU doctor, Dr. Minton isn't too worried about it though.  Today she weighs 3 pounds and 12 ounces.

SUNDAY, APRIL 3rd:
We got the results back for her Meningitis culture.  They are negative.  We also got the results back for my placenta.  They tested it to see if it was infected.  Those results came back negative as well.  Dr. Minton told us he doesn't regret the decision to take little Lola out at 29 weeks.  When she was born, she was acting like she had an infection. (Now we know she didn't have infection).  I was feeling sick that whole day before she was born.  Dr. Minton says that there was probably something brewing in my uterus.  If we had waited a couple more days, I could have become severely sick and Lola could have been infected which would make her stay in the NICU more severe and her treatment worse.

Her gastrointestinal tube is now through her nose.  I told the NICU nurses that I don't ever want to know when they are going to do a procedure because I'm always so worried about how little Lola will handle it.  The thought of them putting a tube through her nose all the way down to her stomach made me cringe.  That doesn't sound fun.  The nurses said she handled it like a champion though.  Since we know that Lola doesn't have infection, they are waiting to see if they will stop the antibiotics which means they can take her umbilical IV out or if they will finish them out.

Michelle got to hold Lola for the first time tonight.  They are limiting skin to skin contact to one time a day for 30 minutes since she still has her umbilical IVs.  Skin to skin will help Michelle's milk supply and also help Michelle's produce antibodies that Lola needs while in the NICU.  It was amazing to see that Lola knows who her mother is.  Once Lola was put on Michelle's chest, she got so comfortable that her oxygen lowered a little bit.  The RT had to increase the oxygen flow.  This is is a normal during skin to skin.  These babies are most comfortable right next to their parents.

3 Generations!  First Granddaughter in the Monson family!

All Michelle's many hospital bands.  She couldn't wait to get these off her wrist!

MONDAY, APRIL 4th:
Lola's umbilical IV was not staying put so they pulled it out.  They placed a PICC line which will last a lot longer.  She is still on the high flow nasal cannula.  Her bilirubin levels came down.  We think that this is a result from the skin to skin.  We were also able to go to a class taught by the Occupational Therapist in the hospital.  There are so many things that we are learning about preemies and babies.  It feels overwhelming but we are doing our best to take everything in.

Here are some of things we learned in the class:

• The nurses try to keep preemies surrounded by firm blanket which acts as a boundary.  When full term babies come out the womb, they bunch themselves often, holding their arms and legs in towards their chest.  When adults and older children get sick, you find yourself curling up into how you were positioned in the womb.  Preemies still had room to move when they are born so it is important to give them boundaries in their cribs/incubators with bean bags/blankets.  When they give preemies a bath, the nurses put a fleece blanket around them.  This makes it more womb like as they enter the water.  The babies respond very well to the firm pressure and it makes them feel that boundary again.  Putting this boundaries up help position their hips and also help them feel like they are in the amniotic sac, which is important for their development.
• When we start talking to Lola in her incubator/crib, it is important to say a few words and then apply firm pressure somewhere.  Each person who visits her should have their own distinct place they touch so Lola will associate that firm pressure with the voice.  
• When doing skin to skin, softly humming a song and making a "shh" noise can help them feel like they are still in the uterus as well.  Also preemies get into a deep sleep faster doing skin to skin rather than on their own.  So skin to skin, up to 4 hours is vital every day.    

TUESDAY, APRIL 5th:

Dr. Minton ordered the nurses to lower her oxygen to 1 Liter. Hopefully throughout the night she will keep up on that level.  If she does, then the nurses will put the lower flow nasal cannula on her.  We went to the parent support group meeting tonight.  It is so nice to know that we are not alone in this endeavor.  And while some may look at our situation and feel sorry for us, we feel so blessed.  We heard some frightening NICU stories last night.

DEXTER THE TODDLER...

I would feel like a horrible mom if I didn't devote posts to Dexter.  He has been an absolute trooper through this whole journey.  While I feel like I am missing parts of his life, he is adapting so well to his Grandmas taking turns raising him for a week.  While I was on bed rest, my mom took  him for a week.  He napped so well for her, he learned how to say, "Bandit", my parents dogs name, and he is starting to like my dad, Papa Monson!

This next week he will go to Ephraim with Dereks mom and I'm going to miss him so much.  I hardly saw him last week and this week.  It has been emotional.  But, I learned from my c-section with Dexter that I need to take care of myself so I can recover faster and not fall into the baby blues/PPD.  I am just extremely humbled and forever in debt to both my mom and my mother in law for helping to raise Dex these next 6 weeks.  We are so fortunate to have such wonderful families.  It really takes a village to raise a child.  Our moms are raising Dexter these next couple months and the NICU is raising Lola.

Anyways, Dexter has loved being at my moms house with Bandit.  My mom would take him on the tramp out back and jump, they would sit on the swing, and go for walks.  Dex also enjoyed feeding Bandit food from the high chair.  He is also teething!  His bottom two molars are coming in.

Looking back on the couple weeks prior to everything that happened, Dexter was so clingy to me.  He would get upset if he saw Derek hug me.  He would come over and push Derek away and then give me a hug.  It was almost as if he was being extremely over-protective of me.  He was extremely cuddly and kept giving me kisses.  And loved snuggling on the couch with me while we watched movies.  I think he knew what was going to happen.  It was almost as if he was telling me, "these are our last cuddles before I grow up to be a toddler, mom."

The evening I got my c section, Derek came over to the hospital with Dexter.  Dex knew what was going to happen that night too.  He sensed something was going to happen to me.  He kept coming over to the foot of my bed while they were putting in the IV and started getting fussy.  We called my brother and SIL to see if they could come to the hospital and take Dexter home to bed so I could continue to be prepped for a c section.  When they took him out of the room, he was crying.

It is amazing the link between children and their mothers.  It is also amazing how children and babies know what is going on.  I'll try to update our blog with cute stories about Dexter as well as update weekly about Lola's progress.  I need to give equal attention to my children.  I am amazed how much my heart grew with Lola being born.  I love both of my children so so much!

Dexter reading books at Grandma Monson's house.

Selfies with Grandma!

Dad took Dexter to the park while Mom was on bed rest.

Playing with his new race track that we bought him.  We have felt so bad his schedule is getting all turned around, that we bought him a race track.  He loved playing with it at Grandma Debbie's.

Giving cuddles to Dad.  He has really become attached to Derek while I was on bed rest.

Dex the Destroyer.  He LOVES to makes messes.

LOLA LUCILLE'S BIRTH STORY...

Last week on March 23, 2016. I woke up feeling very crampy. They were the same period cramps that I had with Dexter when I went into labor. We called the OBGYN and the nurse said to go into labor and delivery. We called mom to come watch Dex so we could head there. While mom was on her way, my water broke....I was sitting on the couch, not doing anything and it broke! We were so surprised and shocked!!

We got to the hospital and they checked me to see if it was really my amniotic fluid, the results were positive. Immediately, they started me on an antibiotic to stop and/or prevent infection, which is their first reaction to why any women's water breaks early, they started me on magnesium (such a weird feeling) which helps prevent bleeding in the babys brain when they are born and stops contractions, and they started me on two rounds of steroid shots to help the babys lungs develop.

We then just waited...everyday went by and it was always unknown...She could come anytime. The goal was to keep her in until 34 weeks or if I started to get an infection, they would take her sooner.

We succeeded keeping her in for a week.  On Wednesday March 30, I woke up feeling nauseas. I wasn't sure if that was because of the constipation I luckily got after being put on strict bed rest or if it was because I was getting sick.  We addressed the constipation issue and the nausea feeling still didn't go away.  So, I took a nap. I thought, maybe I am overly tired from the stress of the unknown?

At about 5:30pm, I awoke from my nap to menstrual like cramping, which is how I feel labor.  The nurses put baby girl on the monitor to make sure her heart rate was okay.  During the process, the nurse pressed on my tummy and it was pretty painful in the lower left region. This was a sign of infection. Once infection starts it can move rapidly in the uterus and get to the baby.

The nurses were very quick to get an IV in of antibiotics and fluids. They were also quick to draw my blood and my white blood cell count was 16. (When I came in the hospital the week before, my blood cell count was 14 and after the antibiotics started it went down to 11.)  I also had a fever that was slowly but steadily increasing as well. So the doctor decided we were having baby. (Side note: Any pregnant can women can get an infection and we have no idea how I got an infection.) At first I was a little shocked.  But, I feel like I was prepared for this to happen.  The previous night, I had a very vivid dream that I delivered the baby.

Anyways, once a mom starts to show signs of infection, they will take the baby. They don't like delivering a baby with infection, it can be dangerous and can hold a baby back from progressing.  The doctors, nurses, and surgical assistants, were so quick to get the c section all prepped and ready. The nurse wheeled me in the operating room, the anesthesiologist did the prep for the spinal tap by trying to numb my back with morphine.  But my back wasn't getting numb at all.  It hurt so bad each time he put the needle in to numb my nerves.  I thought for sure I was cutting off the circulation in Dereks hand and in my doctors hand.  (Isn't it cool that my doctor held my hand while this was happening?)

The anesthesiologist and doctor decided to put me all the way under because they didn't want the infection to get worse. Derek was whisked away to the room where the NICU team was, which was right next to the operating room.  So he got to see little Lola right when she was born. Derek could have seen Lola being born through the window, but chose not to.  I probably would have chosen not to watch as well!  That would be hard to see your wife get cut open!  But he did admit he watched a little bit when they closed me up.

When little Lola arrived, the doctor said she came out, "squawking".  She was a lot bigger than we expected too.  She weight 3 pounds 11 ounces.  Derek said the NICU team was fast to put her on a breathing tube.  They were also quick to get her started on antibiotics in case she had an infection.  The NICU team started the antibiotics through an umbilical IV.  She was placed in an incubator and they also started a gastrointestinal feeding tube as well which is where she will get her nutrients until we start bottle feeding/ breast feeding.

We feel everyones prayers and though it was rocky getting her here, we love her so much.  We are so humbled and our testimony that God knows all his children and never leaves us alone is so strong.  We feel His love more than ever and have remained pretty calm through this journey so far.

Dexter visiting mom during bedrest.

Another day of visiting. 

Lola Lucille Nielsen born on March 30, 2016

 Right after Lola was born.

3 pounds, 11 ounces, 16 inches long

Our tiny, little Lola

PAINTING + DIY NON-TOXIC PAINT RECIPE...

It has been awhile since I have blogged.  Things get busy with a 1 year old transitioning to the toddler stage.  He is definitely a busy, busy boy.  Now that it is winter, we have had to become very creative as we stay indoors a lot.  Today I looked out the window and there was snow.  I love the snow, it is beautiful to look at, but I don't like being cold.  So, the agenda for todays activity I thought should be painting.

I kept thinking that I had paint on hand, and I did but it wasn't baby friendly paint.  In my little boys mind, he would look at the paint on his hands, think it looks like food, and then lick it off his fingers.  So, I looked up a few things on Pinterest (every mothers best friend app) and figured out how to make my own non-toxic paint.

Here is the "recipe":
-1/4 cup of flour
-water
-food coloring
-1/2 tsp of vegetable oil

DIRECTIONS:  I got out a couple small tupperware containers and put the 1/4 cup of flour into each one.  I then proceeded to add water little by little, stirring with a stick until the base was the right consistency.  You don't want add too much water because then the paint won't show up on the paper.  I then added a few drops of food coloring until I got the desired color.  At the end I mixed in 1/2 tsp of vegetable oil to make our paint on the glossy side.

I then got the idea to bring out some of his rubber duckies from his bath toys to use as stamps.  He loved that for a few minutes and then started to throw them on the floor like he does with everything else.  (My staircase has toys tossed and thrown everywhere...I'm bound to trip and break something soon enough).

I will probably end up buying non-toxic paint at the store, but if you don't have any on hand, this is great alternative.  Anyways, here are some fun pictures of the mess we made.  This activity was proof that my child is a prodigy when it comes to the arts.

FALL. . .

I try to come up with clever post title.  But ever since I became a mother, my creativity has been channeled differently.  Now I put all my energy into trying to come up with different creative things for Dexter and I to do throughout the week.  Such as, awhile ago, I let him play with pudding in his high chair.  It was great, but we will probably never do it again because it made such a big mess.

Anyways, as for September and October go, we have really been enjoying this amazing weather.  I wish fall weather could last forever.  The crisp, chill mornings sipping hot chocolate and don't get me started on boots/sweaters!  Oh and stepping on crunchy leaves.  I think the best part is the changing colors in the mountains.  The trees are beautiful!  I really love the aspens.

Anyways, here is our update for the month!  We are trying to be more adventurous and make exercise/getting outside an important part of our daily regime!

Dexter and I on a morning run up the Bridal Veil Falls Path.  This is probably my favorite path to run on with the stroller and with kids!  On a hot day, on the way back from a run, I will get Dex out and put his feet in the water so we can cool down.

We soaked up the last of the splash pad at the beginning of September. 

This is the view on the hike up to Stewart Falls from a week ago.

On our hike to Stewart Falls.  The trees and the view was spectacular!

My mom and Dexter enjoying the scenery after a yummy Costa Vida dinner.

We did a double date with my parents and went to Costa Vida (thank you buy 1 get 1 free coupons) and then we drove to Aspen Grove to eat our salads and enjoy the trees!  My parents look so young still.  They could pass off for Dexters parents in this picture!

Our cute family!

Derek and I went on a date to Park City and the trees were fabulous.  It was kind of gloomy but still fun to walk around and take pictures of the color!

M

Park City with my hubs!

I love the fog and the color in this picture.  

Get outside and enjoy this brisk fall weather!